One person makes a difference

We are still getting the runaround from Huntington Bank. Last I heard, the underwriters might want to look at the papers for MFM’s trust. Ridiculous. If they’d used this much discretion reviewing 2.7 billion of home loans 6 years ago, we wouldn’t have had to bail them out with our tax dollars. Now they won’t loan any money at all.

Anyway, when I was Facebooking about it, I used the @ sign prior to Huntington Bank. I didn’t at the time realize that this meant my posts and its comments would appear on the “Related Posts” page you could reach from the front of HB’s FB property.

So that happened, and it was there for weeks. Then about 10 days ago, I visited Huntington’s Facebook page. There’s no longer a tab or page there for “Related Posts.” It’s gone. They deleted it.

So, ye downtrodden: never let it be said that one person can’t make a difference.

Strange days indeed

I’m blogging about once a month lately, but I figure if The Dancing J can do it then so can I. It’s just that life has bipolar lately: high highs, low lows. It’s exhausting. High highs: Monstro and I are on the cusp of buying our first home. If everything goes according to plan we’ll have it inspected on Tuesday. The price of this home is the price of a down payment on a home in California, and even if we don’t live in it forever the rental market in our city is very landlord-favorable so that’s a good thing. We are planning that MFM will live with us even though just yesterday we decided to extend her rehab therapy by at least another week. She is just *not* a one-person transfer right now –I did some therapy with her and her physical therapist yesterday morning– and if she’s going to come home, she has to be safe and so do I. We have a follow-up with her surgeon on Monday and her PT made some suggestions, so we’re going to try-try-again maybe next Wednesday and see where she’s at. They’ve also recently upped the medication dosage of an appetite-stimulant that she had been tolerating well, so I’m going to bring that up today.

How are you liking this format? I’ll admit that WordPress has always felt soulless to me, but for now the anonymity of the slate appeals to me, even though it’s not like you don’t already know who I am.

Garrettsville Comedy Wrap-Up

So comedy on Saturday night went pretty well. I didn’t place but the second- and third-place winners were local folk –the guy from Second City didn’t place, either– and the first-place winner, Quinn Patterson, walked in not knowing a soul and being the only person of *any* color in the place and pwned us all.

I learned that if I’m going to do my stuff about MFM, I have to keep in the bit about the hat. Otherwise it’s too heavy, maybe, unless I want to go that way, which Freud says is not only the way to go but also the straight shot to comedic catharsis (my phrase). It’s certainly something to mull…

After my set (random draw & I went last, which is funny because at the Improv I went first and Mark said after that he’d have put me later), I was outside w/ Karen’s husband Todd and a woman asked, “is all that true?”

“Yes,” I said.

“I’m sorry,” she replied. “That’s just awful.”

…which is really what you want to hear after having completed some stand-up. Is there a niche in this world for a tragicomedienne?

I am happy that I felt good with my pauses. I usually have a tendency to rush through it. I need to start starting my set with, “Yes, I am Lynn B. Johnson and I’m here to tell you a little bit about myself.” The pauses also slowed my set — I thought it’d be 5 minutes and the tape clocks at over 9.

Quinn did a great job riffing on the elephants in the room but as a conversation, not a rant (and with measured body movements): emulatible.

My expanded Old Navy bit went well, as far as I can recall.

Karen taped me but I haven’t watched it yet, I’m waiting for my comedy rabbi Rob Murphy to give me some notes on it before I see it. Karen has both called and texted the past two days to reassure me of how awesome it was. She literally said she was “in awe.” Cool.

Plea to Congressman Kucinich

04/04/2012

Marilynn E. Johnson
XXXX Xxxxx Xx.
Beachwood, OH 44122

Congressman Dennis Kucinich
14400 Detroit Ave.
Lakewood, OH 44107

Dear Congressman Kucinich:

My husband, our two young sons, and my mother moved to Beachwood from Massachusetts in August, 2011. We love it here and had hoped to purchase the house that we’re currently renting. Our rent payment is $2400 each month and by purchasing the house, we could cut that payment in half. We had to choose this particular house because it was the only one that was accessible for my mom, who uses a combination of walker and wheelchair to get around.

We figured that getting our first home loan would not be a problem. Our credit scores are both above 800 and we earned more than $100,000 last year. My husband earned his Ph.D two years ago and is now a SAGES professor at Case Western Reserve University: that’s why we moved here. Until recently, I was a self-employed marketing/PR consultant with 15 years of experience, but that has been on the back burner for the past two years. Now, I am employed by my mother to care for her — Mom has Parkinson’s disease and Parkinson’s Dementia — and she and I have an employment contract to prove to Medicaid that the money she pays me is not a gift. I have been a full-time caregiver to my mother since September of 2010, though our employment contract was signed in May, 2011.

We applied for a loan through Huntington Bank and after a month of back-and-forth, we learned today that our application was denied. Apparently, my “length of employment,” “uncertain/flucutating income,” and “unacceptable source of funds” (the down-payment amount has been in our bank account for fewer than 60 days) were all problems as far as the underwriters were concerned. The biggest thing they “couldn’t get their heads around,” per Huntington Bank Loan Officer Wade Hampton, was that I am a daughter/POA for my mother, who is my employer, though I can legally hire people to watch my mother. (Which I have done for about 10-20 hours/week, because if you’ve ever cared for someone with dementia, you know you need some time to yourself to go to the gym to burn off the stress of caring 7/24/365 for someone with dementia. I even sleep with the baby monitor on — not for my kids, but for her.)

The disapproval of our home loan application is so wrong on so many levels. The bank believes that we’d be a better credit risk if I put Mom in a home. Family is important to me (if not to the bank). So long as I can safely care for her at home, that’s what I’m going to do. In these terrifying economic times, we have improved our credit scores and our bottom line. Uncertain income? Who hasn’t been laid off at least once in the past three years? Well, we haven’t.

Without a home loan to pay for a wheelchair-accessible house, thereby halving our monthly housing bill, we are going to have to put Mom in a dementia unit, thereby splitting up our family and putting me on the unemployment rolls, which will also force us to move and take our children out of their beloved schools because we cannot afford a $2400 rent payment on one income. My mother’s relationship with her grandchildren and the stability of our home have been the only bright spots for her these past two years. I never expected that choosing to care for my mom would plunge us into a Dickensian lifestyle, but that is what we’re facing. Please, if there is anything you can do, please help us keep our family together.

Sincerely yours,
(signature)

New Digs

Welcome to my new digs. I miss my old digs. BlogHarbor and I were old friends and it servered me well. I’ve got a new server now, and it’s WordPress. You might think WP’s great but it’s not. It’s soulless. It lacks humanity. BlogHarbor had charm and sweet pull-down menus with dates on them. I will miss it.

I think this is the fifth “New Digs” entry I’ve posted lo these past 17 years of blogging, from a /~lynnb directory on Aimnet, to my first domain, to my then-new domain (with a middle domain suggestion thrown in for like a nanosecond, to punish the jerks paying me not to commit potential trademark fraud). And then the BlogHarbor domain with Motormouth, and now the Internet’s Oldest Blog.

The migration went great (thanks guys). Lost all my comment attributions, but maybe that’ll teach me to start tagging stuff (railyards). Thanks to John K, St. John, Sinjun and his support crew (my people! my people!) for keeping all the forwarding and maintaining my SEO. I didn’t read that closely enough — though I did notice that the original notice lacks time committment for the “10% hosting discount,” ahem. No, it’s OK, I warned him I’m a PITA.

Also: MFM was home for four days and then fell again and had surgery this Monday. They brought in a top guy and he was able to fix everything even better than it had been originally. I am thankful. She is sleepy. I am doing comedy on April 14th disguised as “Communicating the Uncomfortable.” One is fueling the other, and vice versa. I’ve been extended a half-assed guest instructor invitation to a communications class at Tri-C. I’m hoping to do it before the comedy competition, give it a trial run.

MFM Update

My mom/MFM has Parkinson's Disease. Last summer, before we moved from Western Massachusetts to Northeast Ohio (Cleveland Rocks!), she was diagnosed with Parkinson's dementia.

If you can't remember how to spell dementia does that mean you have it? It just took me three times.

She broke her hip on Rev. Dr. Martin Luther King, Jr. Eve. Her surgery meant a lot of people didn't get the day off. She was in surgery for five hours and got a unit of blood, then two more the next day because her counts were low. Her whites were fluctuating but she was discharged after two days of no signs of infection. The doctor said no weight on the leg at all for 6-8 weeks, and we'll have a follow-up a couple/three weeks from now.

Now she's in the sub-acute ward of a local rehab center. It's called Menorah Park. Lex asked whether that was where menorahs go to play… in the park. They answer the phone, “Shalom, Menorah Park.”

Mom and us –me, my husband, our two young sons– have been on this journey before so I already knew to ask whether each resident has his/her own TV and phone. You can't assume that they will so I always ask, and they said yes, which is true, but the question I never thought to ask was, “am I going to have to do her laundry.” That's a small, hot load, run all by itself and dried on low-knits.

It's also kosher, which means that the only “outside” foods I can bring in are uncut fruits and vegetables: for those, they call in a Moyle.

I called a family care-plan meeting and everyone there –except me and the intern– started throwing around the words, “private pay.” I told them that MFM was a valuable member of our household but she'd only been there for four days so let's not even start to think about going there. Then the nurse manager said, “it's not us who decides, it's Medicare,” which is true, yes, but I know that particuarly sub-acute wards have some leeway in what they define as week-to-week progress (which is what Medicare needs to see in order to foot the bill).

Her spirits are good and she's working hard in therapy and I had her happily drinking a diet coke and eating Cheez-Its when I told the nursing station I was leaving. Forgot to grab her laundry (grrr…) but I'm taking Lex there today and then I think he and I will go for ice cream, junior-sized.

fool's errand

Today, I ran a fool's errand. I had a iffy feeling about it anyway, so I brought the whole family with me. My beloved, kick-assedly talented DH Monstro drove. I sat in the seat where he has to put the van in “P” and then push the button to open my door. I ran all over the Cleveland Clinic campus and experienced conversations with green hoodies, redjackets, and a hospital cop.

MFM (My Favorite Mother) isn't feeling well and I think she has a UTI, but she couldn't give a sample on Friday at the doctor, so she brought the kit home with her (and a hat!) and we did the catch yesterday. That afternoon, I drove to the Cleveland-Clinic-affiliated ancillary surgical center in my city. But it was Saturday, and it was closed.

[The Cleveland Clinic is the #4 in the nation according to the banners hung in all the streets, which are many because it spans 15+ blocks with 3-4 up and down.]

The security guard Saturday said my best bet was Main Campus, so I found the number for Laboratory Client Services and called. “Oh yeah, bring it here,” the guy said. “It has a bar code, right?” Yes, it does. [Later, in-person, he disavowed all involvement.] He gave me directions that ultimately included an ambulances-only, no-throughway “street.” Monstro and the kids and MFM let me off and I found the red counter after asking just before it came into view.

“And I have a Master's degree!” I told my directional enabler.

The lady behind the red counter looked at it and shook her head. “There's no papers. You have to go to J Building, to Phlebotomy.” Further interrogation got her to tell me the building was also called “The Miller Building.”

I got back to the van, bag in hand, and told them, “I've never worked so hard to hand off a jar of pee.”

We drove up and down. The “Miller Building” is the Miller Pavillion, a double-digit-story, curved glass edifice you expected to see Tom Cruise climbing. Hard to miss. Monstro let me out again and I asked some helper-youths in green hoodies where to go. They pointed me toward the red coats and I marched down a one-person-wide hallway there for that sole purpose.

The red coats tittered at my request. The worker got right on the phone while the trainee ruffled through slip-coated booklet pages. I mumbled something about Stump the Band and the trainee said, “Oh no, she just has to talk to the person who knows whether it's A-10, J4, blah blah.” Clearly, she was worthless so I stepped up to blatantly eavesdrop on the phone conversation in progress.

The red-jacket lady, late-40s, coiffed, waved her nails in the air as she consulted with her higher-up, Oz. “OK, so she should go direct to the lab,” she said. I interrupted,”if he's going to say the lab on 93rd and Carnegie, I've been there and they wouldn't take it.”

A few more worthless minutes and she hung up, but not before saying, “OK, thanks, I'll let her know,” which is never ever going to preface news like, “you just won the lottery!” or “that STD scare was a false alarm.”

“You know, it's the weekend, and we just have a very light staff,” she started.

“Are you saying that there isn't anyone in this building who can test my mother's urine for a UTI?”

She shrugged. “We're just really lightly staffed on the weekend.”

OK. Clearly, when I first saw them and said, “third time's a charm!”, I jinxed it.

I strode down the hallway for everyone and turned the corner past the hospital cop, who had the stance of Morgan Freeman in last night's Casa de Movie “Gone Baby Gone.”

“This whole place,” I told him while not breaking stride, “and nobody can help me find out why my mom is sick.”

“How, what, what do you mean?”

“I go to the lab, they say come here. I talk to the redcoats and they say go back, or just wait until Monday.” During part of this I was facing him, walking backward, not breaking stride (my new boots are great for that, very solid-footed and just high enough). I waved my hand, walked through the double doors, and came back to the van, bag in hand.

“Nobody there can take it,” I said. “Time for lunch!” When we got to Melt, I made sure Monstro locked the minivan.

“I wouldn't want anyone to mess with what's in the backseat,” I said, helping MFM and her walker over the uneven pavement.

“What, you mean the jar of pee?” she answered, cracking up and we laughed.

I'm going to take it back to my neighborhood's surgery center tomorrow morning. Does pee go bad?

***

“You should have thrown the piss at them,” Monstro said while I was writing this before leaving for Rite Aid to buy beer.